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rare disease
International PKU Day 2025: Hopes and Dreams With PKU in the Family
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Jun 28, 2025
Rare Creatives’ Lives: Storytellers on Rare Disease in the Arts
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May 23, 2025
St. Patrick’s Day Luck of the Irish, My Celtic Genes & PKU
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Mar 17, 2025
Book Release – When the Baby Is Not OK: Hopes & Genes
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Feb 5, 2025
That Time Medicaid Saved Us: A Family Story
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Jan 31, 2025
When the Baby is Not OK: Why Newborn Screening Matters
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Jun 28, 2023
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